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Showing posts with label ovarian cancer. Show all posts
Showing posts with label ovarian cancer. Show all posts

23 January 2018

MY CANCER SURVIVING SISTER'S RELAY FOR LIFE PAGE

Image result for relay for life logo 2018
THANK GOD and the doctors and staff of the UVA Cancer Center and her husband Ted, Jennie is a survivor of late stage ovarian cancer. This is her 3rd year participating in the Relay For Life and I am so proud of her. Click the link to make a donation on her page or the team page for her church, Morrisville United Methodist Church, or donate to one of your family member's or friend's who are participating in the Relay For Life!

Hello!
I’m inviting you to join me in walking to help save lives from cancer, at my Relay For Life event. Relay participants are determined to help the American Cancer Society fight all stages of all cancers, in all communities.
American Cancer Society Relay For Life events bring communities together, where teams take turns walking or running around a track or path. Symbolizing that no one should face cancer alone, we take turns or walk together to show our passion for seeing the end of cancer in our lifetime.
Will you join and walk with me? I look forward to working together in ending this disease that affects every one at one time or another during our lives.Learn more or register using the link below.
Many Blessings to you.
Jennie

13 June 2013

Supreme Court says human genes cannot be patented & Natural DNA Cannot Be Patented, Supreme Court Rules 13JUN13

THIS is a great victory for everyone, the Supremes got this one right, thank God!!!! And thank you ACLU!!! A bit of history on this issue can be found at  I don't have long to live. Take Back Your Genes. 4JUN13
http://bucknacktssordidtawdryblog.blogspot.com/2013/06/i-dont-have-long-to-live-take-back-your.html

By Associated Press, Updated: Thursday, June 13, 10:42 AM

WASHINGTON — The Supreme Court says companies cannot patent human genes, a decision that could profoundly affect the medical and biotechnology industries.
In a unanimous decision, the court struck down patents held by Myriad Genetics Inc. on two genes linked to increased risk of breast and ovarian cancer.
Opponents say patent protection shouldn’t be given to something that can be found inside the human body.
But lower courts approved, saying Myriad’s genes could be patented because the DNA it isolated and took from the body has a “markedly different chemical structure” from DNA found naturally within the body.
Justice Clarence Thomas wrote that the DNA is a product of nature and not eligible for a patent merely because it has been isolated.
Copyright 2013 The Associated Press.
http://www.washingtonpost.com/politics/courts_law/supreme-court-says-human-genes-cannot-be-patented/2013/06/13/f7681b22-d436-11e2-b3a2-3bf5eb37b9d0_story.html?wpisrc=al_comboNP_p

Natural DNA Cannot Be Patented, Supreme Court Rules

In a decision that could have broad-reaching effects on the future of science and medicine, the Supreme Court on Thursday ruled that:
— "A naturally occurring DNA segment is a product of nature and not patent eligible merely because it has been isolated."
— But, synthetically created "strands of nucleotides known as composite DNA (cDNA)" are "patent eligible" because they do not occur naturally.
The case, as NPR's Nina Totenberg has reported, revolved around Myriad Genetics, a Utah biotechnology company that:
"Discovered and isolated two genes — BRCA 1 and BRCA 2 — that are highly associated with hereditary breast and ovarian cancer. Myriad patented its discovery, giving it a 20-year monopoly over use of the genes for research, diagnostics and treatment. A group of researchers, medical groups and patients sued, challenging the patent as invalid."
The court's unanimous decision Thursday, Reuters writes, was "a mixed ruling. ... The nine justices reached a compromise by saying synthetically produced genetic material can be patented but that genes extracted from the human body, known as isolated DNA, do not merit the same legal protections."
Writing for the court, Justice Clarence Thomas says that "we merely hold that genes and the information they encode are not patent eligible ... because they have been isolated from the surrounding genetic material."
Watch for more on the decision and its ramifications on The Shots blog.

07 June 2013

I don't have long to live. Take Back Your Genes. 4JUN13

I would like to hear how these companies would justify their patents to God....Please participate in this call to action from the ACLU calling on the U.S. Patent and Trademark Office to ban gene patents, click the link.....

ACLU Action
Below is an email from Kathleen Maxian, who's been fighting a battle against ovarian cancer and has a powerful story to share about gene patents.

Click here to sign the petition
Tell the USPTO to stop patenting our genes.
ACT NOW




Being diagnosed with advanced-stage ovarian cancer was devastating-the doctors say I have, at most, five years left on earth. It didn't have to be this way. 

After my sister's breast cancer diagnosis a few years ago, she had genetic tests done that could have warned both of us about the risks we faced.

But thanks to Myriad Genetics' patents on two important genes, my sister didn't have access to the more accurate tests we needed.

Angelina Jolie's recent decision to have a double mastectomy because of her cancer risk stirred up a lot of controversy, but the point is she had a choice-one that I didn't.

It's crazy for anyone to claim the right to patent our genes for their exclusive profit. Even scarier is that it's prevented people like me from finding out how high-risk we really are.

Thanks to a challenge brought by the ACLU, the Supreme Court might strike down Myriad Genetics' patents on the BRCA1 and BRCA2 genes. Even if it declares these particular patents invalid, it might not apply to other gene patents.

That's why we have to pressure the United States Patent and Trademark Office (USPTO) right now to stop issuing any new patents on our genes, before more harm is done.

Tell the United States Patent and Trademark Office to stop issuing any new gene patents now. 

I learned too late that women with certain genetic mutations of the BRCA1 and BRCA2 genes, like me, have up to an 85 percent lifetime risk for breast cancer and 50 percent risk for ovarian cancer. That's why these tests are so important.

And when Myriad Genetics started enforcing their patents, it meant cracking down on labs offering critical genetic screenings and those conducting the kind of research that would benefit patients like me.

Genes are products of nature-the building blocks of life that help make us who we are. They should not be monopolized. It's like patenting gold or the air or the human heart. And limiting our access to research or testing of genes may have dangerous consequences for our health. 

In fact, most of the federal government agrees with that, while the USPTO is one of the only agencies that thinks differently. But it has the power to make a difference, which is why I need your help in changing its stance.

Demand that the United States Patent and Trademark Office issue a moratorium on any new gene patents.

I feel like cancer has taken over my life and I live in fear every single day. I would love for Myriad Genetics to say "This is bigger than us. Let's get rid of the patent. Let's let other people get involved in this." But if they never do, we must stand together to support the women we love in the fight of their lives. 

Thanks for being there,
Kathleen Maxian 

10 February 2012

Obama's Contraception Rule A Matter Of Life-Altering Care For Some 10FEB12

HEY CATHOLIC BISHOPS, republicans and tea-baggers! What about the medical condition of this woman and millions of women like her??? Where is your compassion, your morality? From HuffPost.....
WASHINGTON, D.C. -- The debate over President Barack Obama's new contraception-coverage rule has been largely been considered through the frame of religious liberties, federal authorities and electoral consequences.
For Kimberly Dudley, however, there is a significant, often delicate, medical component being lost in the discussion.
Dudley is one of approximately five million women who suffer from Polycystic Ovary Syndrome or PCOS, a complex disorder that is a major cause of female subfertility. The condition affected her mother and her mother's six sisters, all of whom were forced to have hysterectomies before the age of 35.
Dudley, now 35 herself, is threatened with a similar outcome. A hormonal imbalance makes it difficult if not impossible for her body to have normal menstrual cycles. Periods can last weeks if not months. Her most recent one started on October 3, 2011. It ended three weeks ago.
"It almost killed me," she said, "the doctors couldn't stop the bleeding." They tried a number of medications before finding one that worked: a double-dosage of Aygestin, a drug that can be classified as a birth control.
"Had the last one not worked I would have likely had a hysterectomy," she said.
The Obama administration's rule change would force hospitals and schools owned and run by the Catholic Church and other religious organizations to offer health care plans to their employees that cover drugs like Aygestin. There is a year grace period before it becomes law and reports early Friday morning suggest that the administration will alter the language to allow religious groups more leeway in (and distance from) providing such coverage. Even when the new rule takes effect, Dudley won't be directly affected. A self-employed real estate broker, she pays $55 every month for her medication. Her insurance company covers the rest.
But that doesn't mean she doesn't have a deeply personal stake in the game. Her husband is a dean at a local North Carolina college. Were he to get a job offer at a Catholic university in one of the states that don't require those institutions to cover the co-pays of their employee's contraception, with her then being dependent on his plan, they'd be unlikely to move. "It would be sad he would have to make job choices based on something like this," she said.
Dudley brings to the debate a perspective that has been largely absent from public view. When the White House initially weighed the merits of changing federal policy on contraceptives, a cadre of largely female advisers invested in expanding health care coverage for women were pitted against mainly male aides, including several prominent Catholics, who warned that it would cause a political firestorm. Since the former won out, the president has come under intense pressure to reverse course.
Members of the Catholic Church, reportedly prepping for months for the battle, have been vocal with their concerns that the rule forces them to violate tenets of faith. Republicans and even some Democrats have warned that the policy represents a dangerous overreach by the federal government. It has been less common to hear from those whose lives (and not just their sex lives) are directly affected by current law.
"I'm a married woman," Dudley said. "I am a Christian. I don't believe in abortion. But this has nothing to do with any of that. This is a health issue for me and for millions of women."





Kimberly Dudley

The Guttmacher Institute estimates that roughly 14 percent of birth control prescriptions are written for non-contraceptive purposes, helping some 1.5 million women with issues like ovarian cancer, ovarian cysts, endometriosis, and endometrial cancer. Their stories, filled with difficult details of medical trauma and personal sacrifice, aren't usually the fodder for piqued political conversation, at least not until this week.
Dudley, for her part, kept the details of her condition secret from all but close friends and family. She only came forward on Thursday morning, when she sent an email to a wider group after finally hitting a boiling point with news coverage of the controversy. She forwarded that email to The Huffington Post shortly after.
Her first inclination that something might be wrong came when she was 18 years old. She went to the campus nurse at the University of North Carolina at Greensboro, who recommended that she see an off-campus doctor. An ultrasound was conducted confirming PCOS. Her life since has been filled with efforts to manage the consequences. She shyly changes topic when people ask why she doesn't have more children (she and her husband have a nine year old.) She misses big events and birthday parties, including her best friend's 40th.
"When you are bleeding that high a volume there are times where you have to wear adult diapers," she says, by way of explaining why she's occasionally housebound.
Even more serious has been the medical complications. One recent large loss of blood resulted in severe iron deficiency and anemia. Things stabilized eventually. But Dudley said her doctor later told her that the doctor had thought she was going to die.
Finding the right medication has changed her life, she says. And she counts herself among the fortunate for having the resources to cover the costs. But she also recognizes how close she comes to being among the cast of the less lucky.
The Church may be sincere in arguing that Obama's new rule violates their consciousness. Lawmakers may be earnest in expressing concerns about the reach of government into world of contraception policy. But that doesn't change the fact that many women suffering from Dudley's condition, as she notes, "do not have access to health insurance coverage to pay for this medication simply because they work at places owned or run by the Catholic Church."